Latest News

Cure SMA Awards $150,000 Grant to Anton Blatnik, PhD, at The Ohio State University

February 8, 2023
Posted in , ,

Anton Blatnik, PhD, at The Ohio State University has been awarded $150,000 for his research project, “Determining Primary Splicing Changes in Spinal Muscular Atrophy.” Dr. Blatnik’s basic research grant is […]

Read More ›

Cure SMA Supports Clinical Trial Readiness

January 26, 2023
Posted in ,

In recent years, the FDA-approval of three new SMA treatments has made it possible for a growing number of affected individuals to receive disease-modifying drugs. In addition, many more potential […]

Read More ›

Cure SMA Awards $150,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

January 26, 2023
Posted in ,

Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA biology. Our Scientific Advisory Board […]

Read More ›

Cure SMA Unveils Advocacy 101 Video Series in Conjunction with 118th Congress

January 13, 2023
Posted in ,

Individuals with SMA and their families can learn how to advocate with their Members of Congress more effectively on issues important to them and the SMA community in a new […]

Read More ›

Genentech Releases SMA Community Letter

December 30, 2022
Posted in ,

Our industry partners at Genentech recently released an SMA community letter summarizing 2022 developments and initiates. Check it out here!

Read More ›

Share Your Air Travel Concerns & Experiences for Cure SMA Report to Congress

December 15, 2022
Posted in ,

The law that governs air travel in the United States is about to expire. Next year, Congress must consider air travel changes through a new Federal Aviation Administration (FAA) reauthorization […]

Read More ›
Scroll to Top