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SMA Community Progress & Advocacy Featured at Cure SMA Hope on the Hill Event

December 12, 2022
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Congressional leaders and key partners, supporters, and members of the spinal muscular atrophy (SMA) community celebrated SMA achievements and advocacy at Cure SMA’s 11th Annual Hope on the Hill Congressional […]

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Cure SMA to Host 11th Annual Hope on the Hill Event in Washington, D.C.

December 5, 2022
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On December 6th, Cure SMA will highlight the progress made in spinal muscular atrophy (SMA) and recognize the advocacy that helped lead to this success in a special event in […]

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Biogen Releases Q3 SMA Community Statement

November 29, 2022
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Learn about Biogen’s latest news in SMA by viewing their Community Statement and a related video.  

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The Giving Season is Here!

November 9, 2022
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Cure SMA leads the way to a world where everyone impacted by SMA is empowered to lead their best lives. As 2022 comes to a close, we celebrate stories of […]

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Community Spotlight: Michelle Tynski and Family

November 8, 2022
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Play is important for kids. It allows children to develop cognitive, social, emotional, and physical skills while engaging creatively. But it’s not just how kids play that’s important, what they […]

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Positive New Data for Genentech’s Evrysdi in Largest Trial Ever Undertaken in Patients With Previously-Treated Spinal Muscular Atrophy (SMA)

November 4, 2022
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Genentech, announced earlier this month new two-year data from the JEWELFISH study evaluating Evrysdi® (risdiplam) in people with Type 1, 2 or 3 SMA aged 6 months to 60 years at […]

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