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Thank You for a Wonderful 2022 Annual SMA Conference!

July 22, 2022
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Thank you to everyone who attended the 2022 Annual SMA Conference at the Disneyland Hotel in Anaheim, California! It was an impactful weekend of opportunities to connect, learn, and have […]

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Cure SMA Attends Spring 2022 Conferences to Promote Findings from Industry Collaboration Initiatives

June 9, 2022
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Cure SMA is pleased to announce the participation of scientific leadership in the 2022 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference (March 13–16, 2022), the American Academy of Neurology […]

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Check Out Cure SMA’s State of SMA Report

June 6, 2022
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Cure SMA is pleased to announce the launch of its first annual State of SMA report. The purpose of this report is to share highlights from Cure SMA’s three databases: […]

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Cure SMA Announces Major Newborn Screening Milestone with Addition of Two New SMA Screening States

June 1, 2022
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With today’s newborn screening action by Oregon and New Mexico, Cure SMA has reached a major screening milestone for spinal muscular atrophy (SMA), with 97 percent of all U.S. newborns […]

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SMA Community Update from Novartis Gene Therapies

June 1, 2022
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We are pleased to share a community update on Novartis Gene Therapies’ Clinical Trial Program.

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FDA Approves Genentech’s Evrysdi (risdiplam) For Use in Babies Under Two Months with Spinal Muscular Atrophy

May 31, 2022
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Genentech, a member of the Roche Group, today announced that the U.S. Food and Drug Administration (FDA) has approved a label extension for Evrysdi® (risdiplam) to include babies under two months […]

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