Latest News
Celebrate 40 Years of Impact – Join Us in Making a Difference!
Thank you for being an essential part of this journey and for believing in our mission. As we mark 40 years of dedicated service to the spinal muscular atrophy (SMA) […]
Read More ›Spinal Muscular Atrophy (SMA) Update in Best Practices: Recommendations for Treatment Considerations
As part of our ongoing efforts to drive quality health care standardization and improvements for the SMA community, Cure SMA is pleased to announce the next publication in a series […]
Read More ›Make an Impact with Cure SMA’s Mission, Milestones, Momentum Campaign
We’re kicking off our Mission, Milestones, Momentum Year-End Campaign with an incredible $50,000 matching gift. In honor of Hunter Rhodes, living with SMA, the Johns Family has generously donated $50,000 […]
Read More ›Majority of Children with SMA Treated with Genentech’s Evrysdi Are Able to Sit, Stand and Walk Independently, Two-Year Data Demonstrate
Positive data confirm Evrysdi efficacy and safety in children first treated pre-symptomatically before 6 weeks of age, with most achieving motor milestones similar to children without SMA All children were […]
Read More ›Cure SMA Hosting Puerto Rico Summit of Strength & Walk-N-Roll
Cure SMA is thrilled to announce the 2025 San Juan, Puerto Rico Summit of Strength,taking place on Saturday, February 1. The Summit of Strength is a community educational program hosted by […]
Read More ›Cure SMA is Thrilled to Launch New Travel Resources Webpage and a New Travel Support Package
Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital support and resources that help people navigate life with SMA. Travel should be […]
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