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Community Spotlight: Viola Dwyer, SMA Community Advocate from Pennsylvania

August 27, 2024
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During this SMA Awareness Month, Cure SMA recognizes all SMA community advocates – individuals with spinal muscular atrophy (SMA) and their families – who are raising awareness about SMA and […]

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Cure SMA Attends Spring 2024 Professional Organization Conferences to Promote Findings from Real World Evidence Collaboration Initiatives

August 13, 2024
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Cure SMA is pleased to announce the involvement of scientific leadership, in the 4th Scientific International Congress on SMA (March 14 – 16, 2024), the 2024 International Society for Pharmacoeconomics […]

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Cure SMA Launches Request for Proposals for SMA Research Projects and Postdoctoral Fellowships

August 2, 2024
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Earlier this summer, at the Annual SMA Research and Clinical Care Meeting, Cure SMA highlighted six new basic research grants totalling $750,000. Cure SMA is now proud to announce another […]

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August is Spinal Muscular Atrophy (SMA) Awareness Month! 

August 1, 2024
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Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA Awareness Month is a time to come […]

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Cure SMA Publishes Update on the Birth Prevalence of Spinal Muscular Atrophy (SMA)

July 23, 2024
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Cure SMA is pleased to announce the publication of “Newborn Screening and Birth Prevalence for Spinal Muscular Atrophy in the US” in JAMA Pediatrics on July 15, 2024. This paper […]

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Special Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting

July 15, 2024
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Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care Meeting. This Special Session is […]

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