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Community Spotlight: Braedon’s Newborn Screening Diagnosis

September 8, 2020
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September is Newborn Screening Awareness Month, a chance to talk about the progress we have made in getting spinal muscular atrophy (SMA) added to newborn screening panels and the work […]

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Biogen Q3 2020 Community Statement: COVID-19 Updates and Latest Milestones

August 27, 2020
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Dear Members of the SMA Community, We continue to work with the healthcare community to help people and families living with SMA get the support they need. As such, we […]

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Scholar Rock Announces that SRK-015 has Received Rare Pediatric Disease Designation from U.S. FDA for the Treatment of SMA

August 14, 2020
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Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today announced that the U.S. Food and Drug […]

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Community Spotlight: Nicole Stickane Advocates for Newborn Screening in Texas

August 13, 2020
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In late July, the Texas Newborn Screening Advisory Committee held a meeting— virtually, of course —to hear an update on the status of statewide newborn screening for spinal muscular atrophy […]

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Genentech Releases Evrysdi™ FDA Approval Letter to the SMA Community

August 11, 2020
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Dear SMA Patient Advocacy Community, As part of our ongoing partnership and following your request to receive updates about the risdiplam clinical development program, we are delighted to share with […]

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Genentech Receives FDA Approval of Evrysdi (risdiplam) for the Treatment of SMA

August 7, 2020
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Genentech, a member of the Roche Group, today announced that it has received approval from the U.S. Food and Drug Administration (FDA) for Evrysdi (risdiplam) to treat adults and children 2 months and […]

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