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A Look Back at 2019: Cure SMA Research Year-in-Review

December 19, 2019
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During our last fiscal year—July 1, 2018, to June 30, 2019—Cure SMA funded more than $7 million in new research and ongoing research. The resources will help accelerate research and […]

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Cure SMA Awards Grants to Four States to Expediate the Implementation of SMA Newborn Screening

December 18, 2019
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With an incidence of approximately one in 11,000, more than 360 infants will be born annually with spinal muscular atrophy (SMA). Newborn screening can help to pre-empt irreversible motor neuron […]

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Biogen Issues Q4 2019 Community Statement on Spinraza

December 16, 2019
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Dear Members of the SMA Community, As part of Biogen’s ongoing commitment to individuals living with, and caregivers affected by, spinal muscular atrophy (SMA), we are pleased to announce updates […]

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Community Spotlight: The Veit Family

December 14, 2019
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Elizabeth and Brian Veit live in Jefferson City, Mo., with their two children—Benjamin, who is 6 years old, and Kate, who is 5 years old. By all accounts, Elizabeth’s second […]

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9th Annual “Hope on the Hill” Congressional Dinner Featured Dr. Francis Collins, National Institutes of Health (NIH)

December 13, 2019
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The 9th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, December 3, 2019 at The Willard Hotel in Washington, DC. More than 180 people from the SMA […]

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Fall 2019 Issue of Compass Now Available

December 10, 2019
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The Fall 2019 issue of Compass is now available online. In this issue we provide a one-year update on the roll-out of the Cure SMA Care Center Network and its […]

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