Latest News
Community Spotlight: Maria Kaloidis
Maria Eleni Kaloidis is a 22-year-old in her final year at Post University. Like most women her age, she enjoys spending time with her family and friends while “drinking way […]
Read More ›Registration Now Open for the 2020 Annual SMA Conference!
We are excited to announce that registration is now open for the 2020 Annual SMA Conference, which will be held at Disney’s Yacht & Beach Club Resort in Orlando, Florida […]
Read More ›Community Spotlight: David Alvarez
David Alvarez is a 19-year-old student from Seymour, Conn., majoring in Business Management/Administration and Marketing at the University of Bridgeport. He is also the founder of MADE Clothing, a business […]
Read More ›Update on Cure SMA Summit of Strength Program – Gearing Up for 2020!
The 2019 Summit of Strength Program was a huge success, with more than 135 speakers sharing their expertise on numerous highly rated and unique topics. We would like to thank […]
Read More ›Check Out the Cure SMA Booklet on “Scientific Considerations for Drug Combinations”
There are now two treatments approved by the U.S. Food and Drug Administration (FDA) that target the underlying genetics of spinal muscular atrophy (SMA) and several others in clinical trials. […]
Read More ›9th Annual “Hope on the Hill” Congressional Dinner
Just one more week until the 9th Annual “Hope on the Hill” Congressional Dinner in Washington D.C.! Next Tuesday, December 3rd, SMA families and advocates, government officials, and industry leaders […]
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