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2018 Research Year-in-Review

December 21, 2018
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Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be used strategically to help accelerate […]

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Cure SMA Funding Leads to 16 New Research Publications in 2018

December 19, 2018
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An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often publish their findings in peer-reviewed […]

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Community Spotlight: The Berkovits Family

December 18, 2018
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When Milo Berkovits was seven months old, his daycare teacher noticed he was not reaching his milestones. What followed from there on were visits to three different pediatricians, an early […]

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Advocacy Year-in-Review 2018

December 14, 2018
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For Cure SMA, 2018 has been a year of great progress. As we continue to make strides into 2019, it is important to take a moment to look back at […]

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Biogen Issues Q4 Community Statement on Spinraza

December 13, 2018
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Bigoen has provided the below community statement on Spinraza.  Dear Members of the SMA community, As we approach the two-year anniversary of the U.S. Food and Drug Administration’s (FDA) approval […]

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AveXis Issues Community Statement on BLA Acceptance

December 12, 2018
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AveXis has provided the following community statement on the BLA submission and acceptance for their investigational therapy, AVXS-101 – now known as ZOLGENSMA®. Dear SMA Community, We are providing this […]

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