Latest News

8th Annual “Hope on the Hill” Congressional Dinner Will Be Held Later This Month in Washington D.C.

November 13, 2018
Posted in , ,

The 8th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, November 27, bringing together SMA families, government officials, and industry leaders to look forward to the […]

Read More ›

Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

November 6, 2018
Posted in , ,

Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate life with SMA. In addition […]

Read More ›

Summit of Strength Program Receives Positive Feedback and Increases Attendance

November 1, 2018
Posted in , ,

Attendance and feedback have been extremely positive for this new program. The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! […]

Read More ›

Registration is Now Open for the 2019 Annual SMA Conference!

October 31, 2018
Posted in ,

Registration is now open for the 2019 Annual SMA Conference! This year’s conference will be held at the Disneyland Hotel in Anaheim, CA from Friday, June 28 through Monday, July […]

Read More ›

Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

October 30, 2018
Posted in , ,

Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you as some states move closer […]

Read More ›

Meet the NDEAM Webinar Panelists

October 24, 2018
Posted in ,

October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The 60-minute webinar will be […]

Read More ›
Scroll to Top