Latest News

Cure SMA Awards $150,000 Grant to Kathryn Swoboda, MD, Massachusetts General Hospital

May 24, 2018
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Cure SMA has awarded a $150,000 research grant to Kathryn Swoboda, MD, at the Massachusetts General Hospital, for her project, “Clinical and pathologic correlations in patients with early infantile-onset SMA.” […]

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2018 Annual SMA Conference Booklet Released

May 24, 2018
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The 2018 Annual SMA Conference Booklet is now posted. The 112-page booklet includes information on workshops, special events and details of the 30th Anniversary SMA Conference, including: 1. A complete […]

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Biogen Releases Community Statement on Spinraza Access and New Data

May 22, 2018
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Biogen has released the following community statement on Spinraza access and new research data. Dear Members of the SMA community, Thank you for your continued support, efforts to raise awareness […]

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2018 Family Friendly Poster Session Presenters Announced

May 21, 2018
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The Family Friendly Research Poster Session allows for one-on-one interactions between families and researchers. Cure SMA has invited researchers, who are attending SMA Researcher Meeting, to present family friendly research […]

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Spring 2018 Issue of Directions Now Available

May 17, 2018
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The Spring 2018 issue of Directions is now available online. Check out our Support & Care publications page to download past issues of Directions and Cure SMA’s Care Series booklets.  […]

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Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018

May 17, 2018
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Cure SMA and Cytokinetics are very pleased to announce that Cytokinetics has committed to a National Platinum Partnership for 2018. Cytokinetics will be supporting several of Cure SMA’s awareness, education, and […]

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