Latest News

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

March 26, 2018
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Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018. As a part of their partnership, Biogen will be sponsoring all walk-n-rolls and galas across […]

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House and Senate Vote to Increase Federal Funding for Newborn Screening Programs

March 23, 2018
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Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the Health Resources and Services Administration […]

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Cure SMA Awards $150,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 21, 2018
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Cure SMA has awarded a $150,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Testing the potential of SMN-AS1 as a therapeutic target in SMA.” […]

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Record Number of Abstracts Submitted for 2018 SMA Researcher Meeting

March 20, 2018
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Abstract submission is now closed for the 2018 SMA Researcher Meeting. We are excited to announce that we received 128 submissions, a record number. Our submissions come from researchers in […]

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The Discovery of SMA

March 20, 2018
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In 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a milestone more than 100 years […]

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Roche Releases Community Statement on RG7916 and Olesoxime Programs

March 15, 2018
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Roche has provided the following community statement on RG7916 and Olesoxime investigational programs. Dear SMA Community, We are very pleased to share an update of the Roche SMA program We […]

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