Latest News

Cure SMA Announces Local Educational Symposiums in 16 US Locations

February 12, 2018
Posted in , ,

Cure SMA is pleased to announce a slate of one-day local symposiums, beginning late spring and continuing into fall 2018. The symposiums will be held in 16 locations across 15 […]

Read More ›

Winter 2018 Compass Now Available Online

February 9, 2018
Posted in , ,

The winter 2018 issue of Compass is now available online. This issue covers Cure SMA’s community survey, and reviews how data is used to improve research, care and coverage in […]

Read More ›

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

February 8, 2018
Posted in , ,

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) today recommended that newborn screening for spinal muscular atrophy be implemented nationwide. This decision is an important step toward […]

Read More ›

Utah Becomes First State to Implement Permanent Screening for SMA

February 6, 2018
Posted in , ,

The Utah Department of Public Health has announced that, effective immediately, all newborns born in the state will be screened for spinal muscular atrophy. This announcement makes Utah the first […]

Read More ›

Federal Committee to Vote on Spinal Muscular Atrophy Newborn Screening on Thursday

February 2, 2018
Posted in , ,

On Thursday, February 8, the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC), a federal committee that oversees newborn screening, will vote on whether to recommend newborn screening […]

Read More ›

Preliminary Data from FIREFISH Trial in Type 1 SMA Infants Presented at the International Scientific Congress on Spinal Muscular Atrophy

January 30, 2018
Posted in , ,

PTC Therapeutics, Inc. recently announced the presentation of early interim data from Part 1, the dose-finding portion of the FIREFISH study. FIREFISH is a two-part seamless, open-label, multi-center study to […]

Read More ›
Scroll to Top