Our Impact

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

January 2, 2019
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Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]

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Hope on the Hill Congressional Dinner Raises $200,000

December 28, 2018
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The 8th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, November 27, 2018 at The Willard Hotel in Washington, DC. More than […]

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2018 Research Year-in-Review

December 21, 2018
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Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be […]

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Cure SMA Funding Leads to 16 New Research Publications in 2018

December 19, 2018
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An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often […]

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Advocacy Year-in-Review 2018

December 14, 2018
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For Cure SMA, 2018 has been a year of great progress. As we continue to make strides into 2019, it is important to take a […]

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Fall 2018 Issue of Compass Now Available

December 4, 2018
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The fall 2018 issue of Compass is now available online. This issue of Compass covers the SMA Care Center Network and its goal of developing an […]

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Cure SMA Launches “SMArt Moves” for Early Diagnosis and Treatment

November 14, 2018
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Cure SMA today launches SMArt Moves, a new disease awareness and educational campaign to empower parents, pediatricians and other healthcare professionals to swiftly recognize and […]

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Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

October 30, 2018
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Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you […]

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North Carolina to Screen Newborns for SMA Through Early Check

October 17, 2018
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Early Check, a new research study led by RTI International, is now available for newborn babies in North Carolina. Early Check is a free screening […]

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SMA Newborn Screening Advancements

September 12, 2018
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The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on another of our long-term priorities: […]

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