Our Impact

SMA Newborn Screening Guidelines Published in Journal of Neuromuscular Diseases

April 6, 2018
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The recent decision of the federal Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) to recommend SMA for addition to the RUSP, as […]

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Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

April 2, 2018
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Cure SMA is excited to announce that AveXis is returning as a National Premier Partner for 2018. As part of their partnership, AveXis is generously […]

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Cure SMA Awards $150,000 Grant to Brunhilde Wirth, PhD, Institute of Cologne, Germany

March 29, 2018
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Cure SMA has awarded a $150,000 research grant to Brunhilde Wirth, PhD, at Institute of Cologne, Germany, for her project, “Study of combinatorial therapy based […]

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Cure SMA Awards $50,000 Grant to Rashmi Kothary, PhD, University of Ottawa

March 29, 2018
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Cure SMA has awarded a $50,000 research grant to Rashmi Kothary, PhD, at the University of Ottawa, for his project, ” The shifting landscape of […]

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Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

March 28, 2018
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Cure SMA has awarded a $150,000 research grant to Robin Parks, PhD, at the University of Ottawa, for his project, “Serum-derived exosomes as a biomarker […]

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Cure SMA Awards $75,000 Grant to Robert Kalb, MD, Northwestern University

March 14, 2018
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Cure SMA has awarded a $75,000 research grant to Robert Kalb, MD, at Northwestern University Feinberg School of Medicine, for his project, “Effects of diminished […]

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Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, Columbia University

March 13, 2018
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Cure SMA has awarded a $150,000 research grant to Umrao Monani, PhD, at Columbia University, for his project, “SMA modulators as a means to revealing […]

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Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, Medical College of Wisconsin

March 7, 2018
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Cure SMA has awarded a $150,000 research grant to Allison Ebert, PhD, at the Medical College of Wisconsin, for her project, “Role of astrocyte-produced miR-146a […]

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Awareness is Best Raised When We Work Together

March 6, 2018
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When a loved one is affected by spinal muscular atrophy, whether recently diagnosed or living with SMA for a while, you want to make a […]

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Additional Funding for SMA Care Centers Announced

February 14, 2018
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Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase […]

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