There are plenty of reasons for everyone to exercise regularly, but for the spinal muscular atrophy (SMA) community, exercise has potential benefits in supporting greater muscle strength and motor function. With many still at home due to the ongoing pandemic, Cure SMA is pleased to share a new Physical Therapy Webinar Series, sponsored by Biogen […]
Cure SMA Launches Physical Therapy Webinar Series Read More »
New developments in treatments for spinal muscular atrophy (SMA) over the last few years have changed what is possible for people with SMA, allowing them to achieve new developmental milestones. However, these treatment advances have also raised new questions for the community, including whether combining treatments is safe and offers additional efficacy. To better understand the
Cure SMA Offer Perspectives on Combination Therapy for SMA Read More »
You can get a head start on your healthy New Year’s resolutions and sign up today for our 2021 Team Cure SMA endurance race series! Team Cure SMA is an endurance program that connects runners and cyclists with Cure SMA. Over the last two years, Team Cure SMA athletes from across the country have trained
Team Cure SMA Launches 2021 Race Series for Full SMA Community Read More »
With consideration of the current COVID-19 pandemic and beyond, Cure SMA continues to advocate for the importance of overall health and wellness. Therefore, we are pleased to announce we will be hosting a new three-part educational program, the Wellness Webinar Series, sponsored by Genentech. All members of the spinal muscular atrophy (SMA) community are invited
Cure SMA to Host Webinar Series on Wellness for the SMA Community Read More »
Dear SMA Community, While 2020 did not pan out as we had expected, Cure SMA remains extremely optimistic about the future for our community in 2021 and beyond. Here are the reasons why: Research and Treatment The research Cure SMA funds continues to expand our knowledge of SMA and deliver treatment opportunities, as reflected in
Cure SMA’s New Year Letter for 2021 Read More »
Dear SMA Community, As 2020 draws to a close, we want to provide an overview of our recent work in the community over the fourth quarter and updates related to clinical studies of Evrysdi™ (risdiplam), which was approved earlier this year for the treatment of spinal muscular atrophy (SMA) in people 2 months of age
Genentech End-of-Year Community Statement Read More »
Below we have provided an update from Biogen regarding the status of its DEVOTE clinical trial. For more information about SPINRAZA (nusinersen), visit https://www.curesma.org/spinraza/. ++++++++++++++++++++ Biogen’s DEVOTE study is designed to evaluate the safety, tolerability, and potential for even greater efficacy of SPINRAZA when administered at a higher dose than currently approved for the treatment
Biogen Provides SMA Community Update on DEVOTE Study Read More »
Brian Chiorello is a Principal Service Delivery Manager at a financial services company near where he lives in Orlando, FL. He resides there with his wife and 3-year-old daughter. In the early 1990s, Brian had plans to join the Navy, but things changed when a naval doctor suspected something was not quite right. “His suspicions
Community Spotlight: Brian Chiorello Read More »
During our past fiscal year—from July 1, 2019 to June 30, 2020—Cure SMA funded more than $9 million in new and ongoing research and care initiatives. This money will be used strategically to help accelerate research and ensure we are developing treatments and protocols for all types, ages, and stages of spinal muscular atrophy (SMA).
Cure SMA Funds Over $9 Million in New and Ongoing Research in FY20 Read More »
High school sweethearts, Steven and Amy Hoskin, and their 19-month-old son, Grayson, reside outside Sacramento, CA. Steven describes them as a goofy bunch, always playing practical jokes on each other. Grayson is quick to acclimate to his family’s cheerful demeanor and loves to join in on the silliness. Grayson has been through a lot for
Community Spotlight: The Hoskin Family Read More »
