This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA has awarded a $150,000 grant to Emily Welby, Ph.D., of the Medical College of Wisconsin for her project titled, ” The role of astrocytes in SMA motor neuron synapse defects.” Dr. Welby is a post-doctoral researcher working […]
Dear SMA Community, We want to provide an update on Biogen’s efforts to help ensure the health and safety of the SMA community amid the novel Coronavirus (COVID-19). As you may have heard, on February 26-27, Biogen held a strategic management meeting in Boston with primarily office-based employees. Following the meeting, several attendees developed flu-like
Biogen Issues Community Letter with Perspective on Coronavirus (COVID-19) Read More »
This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA has awarded a $190,000 research grant to Umrao Monani, Ph.D., of Columbia University, for his project titled, “Genetic suppressors of the SMA phenotype.” Dr. Monani is associate professor of Neurology and Pathology & Cell Biology, and
As coronavirus, also known as COVID-19, continues to spread in communities, Cure SMA has also been closely tracking the situation. The health, safety, and well-being of the entire SMA community is important to us. While community engagement is a longtime Cure SMA priority and several opportunities for involvement are fast approaching, we are cognizant of
This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA and Cure SMA Canada have awarded a $100,000 research grant to Rashmi Kothary, Ph.D., at the Ottawa Hospital Research Institute, for his project titled, “Characterization of canonical disease features in a novel mouse model of SMA
This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA has awarded a $150,000 grant to Timra Gilson, Ph.D., of Indiana University, for her project titled, “αCOP complex dependent axonal transport of RNA.” Dr. Gilson is a post-doctoral researcher working in the laboratory of Dr. Elliot
This article is part of a series of Cure SMA grant announcements that will be shared throughout the next couple of months. Cure SMA has awarded a $150,000 grant to Dmytro Morderer, Ph.D., of the Mayo Clinic in Jacksonville, Fla., for his project titled, “Effect of SMN deficiency on ribonucleoprotein assembly.” Dr. Morderer is a
The Power of the Spirit to Overcome Cesar Rodrigues is a 32-year-old abstract painter from Worcester, Mass. His paintings have been showcased and sold in various galleries, and his first solo exhibition will be held May 2-June 27 at the Gallery Seven in Maynard, Mass. Cesar describes how his work “gives a feeling of
Community Spotlight: Cesar Rodrigues Read More »
This article is part of a series of Cure SMA grant announcements that will be shared throughout the next couple of months. Cure SMA has awarded a $170,000 research grant to Lyndsay Murray, Ph.D., at the University of Edinburgh, for her project titled, “Developing strategies to support enlarged motor units following SMN restoration in mouse
To help clinicians and the families they serve in the decision of when to administer therapy to infants identified with SMA via newborn screening, Cure SMA convened a working group comprised of 15 SMA experts to develop treatment guidelines. These guidelines, “Treatment Algorithm for Infants Diagnosed with Spinal Muscular Atrophy through Newborn Screening,” were originally
