Scholar Rock Announces Publication of Preclinical Data on the Therapeutic Benefit of Inhibiting Myostatin Activation in Models of SMA

Leave a Comment / Clinical Trials, Front Page News, Research /

Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today announced the publication, “Specific Inhibition of Myostatin Activation is Beneficial in Mouse Models of SMA Therapy” in the peer-reviewed journal Human Molecular Genetics. The publication details preclinical studies demonstrating that a highly […]

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Cure SMA Launches “SMArt Moves” for Early Diagnosis and Treatment

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Cure SMA today launches SMArt Moves, a new disease awareness and educational campaign to empower parents, pediatricians and other healthcare professionals to swiftly recognize and diagnose the early signs of motor delays. This allows infants and children diagnosed with SMA (spinal muscular atrophy) to receive life-changing—and in some cases, life-saving—treatment. Infants and toddlers diagnosed with

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8th Annual “Hope on the Hill” Congressional Dinner Will Be Held Later This Month in Washington D.C.

Leave a Comment / Advocacy, Events & Fundraising, Front Page News /

The 8th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, November 27, bringing together SMA families, government officials, and industry leaders to look forward to the next stages for our community. Through this event, we hope to build momentum in the Washington D.C. area to increase awareness of our mutual goals

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Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

Leave a Comment / Community Awareness, Front Page News, Support & Care /

Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate life with SMA. In addition to our current support programs, Cure SMA is thrilled to launch a brand-new program specifically for teens and adults living with SMA. This program is

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Summit of Strength Program Receives Positive Feedback and Increases Attendance

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Attendance and feedback have been extremely positive for this new program. The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! The Summit of Strength is a day of community and learning; it brings together families in their local areas to discuss local SMA care, support

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Registration is Now Open for the 2019 Annual SMA Conference!

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Registration is now open for the 2019 Annual SMA Conference! This year’s conference will be held at the Disneyland Hotel in Anaheim, CA from Friday, June 28 through Monday, July 1, 2019. We are excited to bring the conference back to a Disney location and hope you can join us! Disneyland Hotel, where the majority

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Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

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Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you as some states move closer to adoption of SMA Newborn Screening. Kansas Adopts SMA Newborn Screening Kansas has adopted SMA Newborn Screening and is working toward implementation. The Kansas Health

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Meet the NDEAM Webinar Panelists

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October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The 60-minute webinar will be held on Wednesday, October 24 at 2:00 p.m. CDT. Register today  Kaitlyn Yang Social media: @KaitlynYang At age nine, Kaitlyn Yang emigrated to the U.S.

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Meet the National Disability Employment Awareness Month (NDEAM) Panelists

Leave a Comment / Community Awareness, Front Page News /

October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The 60-minute webinar will be held on Wednesday, October 24 at 2:00 p.m. CDT. Register today! Kaitlyn Yang @KaitlynYang At age nine, Kaitlyn Yang emigrated to the U.S. from China

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