The 8th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, November 27, bringing together SMA families, government officials, and industry leaders to look forward to the next stages for our community. Through this event, we hope to build momentum in the Washington D.C. area to increase awareness of our mutual goals […]
Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate life with SMA. In addition to our current support programs, Cure SMA is thrilled to launch a brand-new program specifically for teens and adults living with SMA. This program is
Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA Read More »
Attendance and feedback have been extremely positive for this new program. The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! The Summit of Strength is a day of community and learning; it brings together families in their local areas to discuss local SMA care, support
Summit of Strength Program Receives Positive Feedback and Increases Attendance Read More »
Registration is now open for the 2019 Annual SMA Conference! This year’s conference will be held at the Disneyland Hotel in Anaheim, CA from Friday, June 28 through Monday, July 1, 2019. We are excited to bring the conference back to a Disney location and hope you can join us! Disneyland Hotel, where the majority
Registration is Now Open for the 2019 Annual SMA Conference! Read More »
Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you as some states move closer to adoption of SMA Newborn Screening. Kansas Adopts SMA Newborn Screening Kansas has adopted SMA Newborn Screening and is working toward implementation. The Kansas Health
Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption Read More »
October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The 60-minute webinar will be held on Wednesday, October 24 at 2:00 p.m. CDT. Register today Kaitlyn Yang Social media: @KaitlynYang At age nine, Kaitlyn Yang emigrated to the U.S.
Meet the NDEAM Webinar Panelists Read More »
October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The 60-minute webinar will be held on Wednesday, October 24 at 2:00 p.m. CDT. Register today! Kaitlyn Yang @KaitlynYang At age nine, Kaitlyn Yang emigrated to the U.S. from China
Meet the National Disability Employment Awareness Month (NDEAM) Panelists Read More »
The below guest blog post was written by Jaclyn Greenwood in honor of National Disability Employment Awareness Month. Jaclyn is a board certified genetic counselor who also lives with SMA type 2. My name is Jaclyn Greenwood and I have SMA type 2. I am fortunate to have a career and job I enjoy. I
NDEAM Spotlight: Jaclyn Greenwood Read More »
The below NDEAM Spotlight was written by Kim Hill, Disability Integration Specialist at the Oklahoma Department of Emergency Management, who also lives with SMA Type II. Hello! My name is Kimberly or Kim Hill. I am a 34-year-old from Oklahoma with SMA Type II. I am trached and use a ventilator full time and I
National Disability Employment Awareness Month Spotlight: Kim Hill Read More »
October is National Disability Employment Awareness Month (NDEAM)! In its honor, Cure SMA is hosting our first NDEAM webinar where the audience will hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar today. The 60-minute webinar will be held on Wednesday, October 24 at 2:00 p.m. CDT. NDEAM
Register for Cure SMA’s First National Disability Employment Awareness Month Webinar Read More »
