Cure SMA Announces #GivingTuesday Social Media Campaign

Orginially published on November 26, 2012. To commemorate those amazing deals and savings from your Black Friday and Cyber Monday shopping, celebrate the beginning of the giving season by choosing to donate to support finding a treatment and a cure for spinal muscular atrophy. On Tuesday, November 27, 2012, people from over 1,400 organizations across […]

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Cure SMA Announces #GivingTuesday Social Media Campaign

Orginially published on November 26, 2012. To commemorate those amazing deals and savings from your Black Friday and Cyber Monday shopping, celebrate the beginning of the giving season by choosing to donate to support finding a treatment and a cure for spinal muscular atrophy. On Tuesday, November 27, 2012, people from over 1,400 organizations across

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2015 SMA Researcher Meeting Summary: SMA Pathology

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This update covers a session on SMA Pathology. The session was moderated by Mark Rich, MD, PhD SMA Pathology: Consequences and Potential Endpoints This session focused on the circuits that

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2015 SMA Researcher Meeting Summary: Drug Discovery

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This update covers a session on drug discovery. The session was moderated by Elliot Androphy, MD Preclinical and Clinical Drug Development for SMA The 2015 SMA Researcher Meeting closed with

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2015 SMA Researcher Meeting Summary: Clinical Research

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This update covers a session on clinical research and outcome measures. The session was moderated by Thomas Crawford, MD. Clinical Research Studies and Outcome Measures This session started off with

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2015 SMA Researcher Meeting Summary: Newborn Screening

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This update covers a session on newborn screening. The session was moderated by Kathryn Swoboda, MD. Newborn Screening for SMA: Ethics, Rationale, and Implementation Data generated in mouse models of

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Updates from Drug Programs in Clinical Trials

At the Annual SMA Conference, representatives from six of the seven programs currently in clinical trials gave an update on their programs. Of these six programs, four—gene therapy, ISIS-SMNRx, RG7800, and LMI070—treat the underlying genetics of SMA. Gene therapy aims to correct the mutation in the SMN1 gene that causes SMA, and the other three

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2015 SMA Researcher Meeting Summary: Emerging Trends in Motor Neuron Pathobiology

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This update covers the special session, “Emerging Trends in Motor Neuron Pathobiology.” This summary was written by Cure SMA Scientific Advisory Board member Doug Kerr, MD, PhD. Emerging Trends in

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House of Representatives Passes 21st Century Cures

The House of Representatives has passed 21st Century Cures. Cure SMA is proud to support this legislation. Thank you for your calls and tweets to voice your support to your Representatives. They really made a difference! So what happens next? The Senate is busy drafting their version of the bill, called “Innovation,” and we expect

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