Originally published on March 25, 2014. Cure SMA is leading the way to a world without SMA by advancing a comprehensive research program, of which basic research is a key component. Cure SMA has awarded 79 basic grants for a total of $9,507,612 in the past 10 years. Dr. Rashmi Kothary at The Ottawa Hospital […]
Originally published on April 1, 2014. Cure SMA is leading the way to a world without SMA by advancing a comprehensive research program, of which basic research is a key component. Cure SMA has awarded 79 basic grants for a total of $9,507,612 in the past 10 years. Dr. Chien Ping Ko at The University
Cure Spinal Muscular Atrophy Awards New Research Funding of $75,000 to Dr. Chien-Ping Ko Read More »
Originally published on April 1, 2014. REGENX Biosciences, LLC and AveXis, Inc. announce that they have entered into an exclusive agreement for the development and commercialization of products to treat Spinal Muscular Atrophy (SMA) using NAV rAAV9 vectors. Under the terms of the agreement, REGENX granted AveXis an exclusive, worldwide license, with rights to sublicense,
Originally published on April 24, 2014. Cure SMA invests in four research areas: Basic Research, Drug Discovery, Clinical Research, and Care Research. Cure SMA has invested $35 Million in research in the past decade alone. Right now we are providing funding for 24 different research projects. Later in 2014, new funding announcements will be made
Originally published on May 28, 2014. Cure SMA has been awarded a grant from The National Institute of Neurological Disorders and Disease (NINDS) and the Office of Rare Disease Research at The National Center of Advancing Translational Sciences (NCATS) of the National Institutes for Health (NIH) to support the 2014 SMA Research Group Meeting. We
Based in Buffalo, NY, the Spinal Muscular Atrophy Research Team (SMART) is a grass roots organization started in 2009 to raise awareness and funds for research aimed at finding a cure for SMA & related diseases. SMART is an all-volunteer organization of friends and family with the mission of providing hope for a better life,
SMART Gives $50,000 to Cure SMA to Support Research Read More »
Originally published on July 9, 2014. Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects, under a competitive review by our Scientific Advisory Board. Up to to $700,000 will be committed to new research projects in this round of funding, with other rounds of funding to be
Originally published on July 16, 2014. Cure Spinal Muscular Atrophy (SMA) is pleased to announce that we are accepting applications for 2014 funding of clinical care research projects, under a competitive review by our Medical Advisory Council (MAC). The goal of this program is to improve care and living with SMA. Program Overview: The deadline
Back by popular demand, Cure SMA and Isis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open to children with spinal muscular atrophy, their siblings, and to children of parents with SMA. Isis will select three entries to use in their annual holiday card. These winning entries will receive
Cure SMA and Isis Announce 2015 Holiday Card Contest Read More »
Originally published on August 6, 2014. Christian Lorson PhD, investigator in the Bond Life Sciences Center and Professor of Veterinary Pathobiology at the University of Missouri, has been working on the development of a novel compound found to be efficacious in animal models of disease. The compound is an antisense oligonucleotide (ASO). It increases life
