Originally published on August 6, 2014. Christian Lorson PhD, investigator in the Bond Life Sciences Center and Professor of Veterinary Pathobiology at the University of Missouri, has been working on the development of a novel compound found to be efficacious in animal models of disease. The compound is an antisense oligonucleotide (ASO). It increases life
Originally published on August 20, 2014. Recently, we announced that Dr. Lyndsay Murray at The University of Edinburgh will receive a a Cure SMA basic research grant of $80,000 over two years, to explore the reasons causing motor neuron cell death in SMA. Motor neurons are nerve cells in the brain stem and spinal cord
Cure SMA Announces Basic Research Funding for Dr. Lyndsay Murray Read More »
Registration is now open for the 2016 Annual SMA Conference, which will be held in Anaheim, CA, at The Disneyland Hotel from Thursday, June 16th through Sunday, June 19th, 2016. Every year, Cure SMA sponsors a conference to bring together the leading SMA researchers, clinicians, and families living with SMA. Cure SMA has been hosting
Family Registration for the 2016 Annual SMA Conference is Now Open Read More »
Fourteen-year-old Bailey Walter was recently selected from among 20,000 entrants to receive the August Nickelodeon Halo Effect Award. This award honors teens from around the country for their charitable work. Bailey received the award for the “Let Them Dance” campaign, which she started in honor of her best friend, Kale Shiesley, who has SMA. The
Western New York Teen Wins Nickelodeon Halo Award Read More »
Originally published on October 21, 2014. Scott Geller received inaugural Community Partnership Award at The Annual SMA Conference. We are proud to announce Scott Geller, who chaired the Chesapeake Chapter Golf Outing for fourteen years, as the first ever recipient of the Annual Community Partnership Award. The award was presented at The Annual SMA Conference
Cure SMA Honors Scott Geller with 1st Annual Community Partnership Award Read More »
Originally published on July 30, 2014. Thank you to our amazing Chapter Leaders and SMA families who spend countless hours planning these wonderful fundraising events in support of finding a treatment and a cure for spinal muscular atrophy. Over the last two years, Cure SMA’s amazing chapter leaders and SMA families have raised $10 million
Fundraising Support of Cure SMA Reaches New Milestone Read More »
Originally published on January 21, 2014. The Cure SMA spring event season is already making huge progress toward our goal of raising over $1.6 million to fund exciting new SMA research and critical family support programs. Our Development Team here at Cure SMA is here to help you create new events in your area and
Start a Fundraiser with These Resources and Ideas from Cure SMA! Read More »
Originally published on August, 7 2014. Cure SMA and BAYADA Pediatrics is proud to jointly announce that BAYADA has renewed its partnership with Cure SMA, as a national sponsor of the Walk-n-Roll program. Throughout the past year, in the true spirit of providing community service where they live and work, BAYADA Pediatrics offices came together
BAYADA Pediatrics Renews National Sponsorship with Cure SMA Read More »
Originally published on May 2, 2013. This spring some of our key events are celebrating their 10th year in support of funding a treatment and a cure for SMA. Over the next two months, the OKI Chapter Walk-n-Roll, Pennsylvania Chapter Walk-n-Roll and the Rocky Mountain Golf Tournament will each celebrate 10 years of fundraising success,
Spring Milestone Events Reaching New Heights for Cure SMA Read More »
Originally published on April 3, 2014. Thanks to so many amazing Chapter leaders and SMA Families, we are aiming to raise over $1.6 Million to fund advancements in SMA research and critical family support and patient care programs. Over the next four months, our Chapters and SMA families will be hosting over 60 events including
