Genentech recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is being studied as a potential treatment for spinal muscular atrophy (SMA): “Moonfish is studying RG7800, an investigational SMN2 splicing modifier that Genentech (Roche) is developing for the treatment of spinal muscular atrophy (SMA). This program is in
New Update on Clinical Development of RG7800 Read More »
Originally published on September 24, 2010. Cure SMA is pleased to announce the creation of a new chapter in Georgia! Located in Albany, GA, the chapter is excited to begin helping families throughout their state and fundraising to support research to find a treatment and a cure for SMA. Ashley Jones, Vice-President, has been crucial
Cure SMA Welcomes the Georgia Chapter Read More »
Originally published on January 16, 2012. Cure SMA is pleased to announce the creation of the Carolinas Chapter and the Capital Region which will be a satellite Chapter of Greater New York! Located in Raleigh, NC and Albany, NY respectively, the chapters are excited to begin helping families throughout their areas and fundraising to support
Originally published on November 9, 2012. Thank you to our amazing Chapter Leaders and SMA families who spend countless hours planning these wonderful fundraising events in support of finding a treatment and a cure for SMA. Together, we hosted over 19,500 participants at 130 events raising over $1.45 Million to help fund new SMA research
Another Record Breaking Fall Fundraising Season in Support of Cure SMA Read More »
Originally published on September 13, 2012. Throughout the month of August, the SMA Community joined together to raise awareness of spinal muscular atrophy and hosted dozens of awareness events across the country! The SMA Community officially recognizes August as Spinal Muscular Atrophy Awareness month, an effort that Cure SMA has been coordinating since 1996. Families
SMA Families from Across the Country Make Waves During SMA Awareness Month Read More »
Originally published on July 27, 2012. August is SMA Awareness month and families and friends around the country are joining together to help promote this devastating disease so that we can one day see a world where SMA is treatable and curable. So, how can you get involved? There are numerous ways to raise much
SMA Awareness Month: What You Can Do with Support From Cure SMA! Read More »
Originally published on September 24, 2012. The 10th Annual Northern California Walk-n-Roll, held August 25, 2015 at Golden Gate Park in San Francisco, CA was a tremendous success! To celebrate the milestone event, participants and their supporters joined together to make this year’s Northern California Walk-n-Roll the most successful in the event’s ten-year history. Over
10th Annual Northern California Walk-n-Roll Raises Record Total in Milestone Year Read More »
Originally published on October 25, 2012. The 10th Annual Alabama Chapter Walk-n-Roll to Cure SMA, held October 6, 2012 at Snow Hinton Park in Tuscaloosa, AL was a tremendous success! The Alabama Chapter of Cure SMA held their 10th Annual Walk-n-Roll to cure SMA on Saturday, October 6, 2012. With an amazing turnout of over
Cure SMA Alabama Chapter Walk-n-Roll to Cure SMA Reaches Milestone 10th Annual Year Read More »
Orginially published on November 26, 2012. To commemorate those amazing deals and savings from your Black Friday and Cyber Monday shopping, celebrate the beginning of the giving season by choosing to donate to support finding a treatment and a cure for spinal muscular atrophy. On Tuesday, November 27, 2012, people from over 1,400 organizations across
Cure SMA Announces #GivingTuesday Social Media Campaign Read More »
Orginially published on November 26, 2012. To commemorate those amazing deals and savings from your Black Friday and Cyber Monday shopping, celebrate the beginning of the giving season by choosing to donate to support finding a treatment and a cure for spinal muscular atrophy. On Tuesday, November 27, 2012, people from over 1,400 organizations across
Cure SMA Announces #GivingTuesday Social Media Campaign Read More »
