I am a medical education researcher fielding a survey to individuals or caregivers of individuals with Type II or III spinal muscular atrophy (SMA) to understand their specific challenges as well as informational and educational needs. The purpose of the research is to develop a report to inform supporters of patient education of the real-world needs of patients with SMA. Some examples of what we are hoping to understand are patient experiences with clinical trials, preferred ways to receive information, and educational topics you would like to see more of in the future.
Your responses will be considered confidential and not linked back to you in any way. If you are a United States resident 21 years of age or older, a patient or a caregiver of a patient with Type II or III SMA, and are interested in participating in this 15-minute survey, please follow the following link: http://bitly.com/5sMa82
To participate, you will be asked to enter this passcode: 1sMa258
Thank you,
Gregory Salinas, PhD
CE Outcomes, LLC
VP of Research and Assessment