Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA's Puerto Rico chapter has already been hard at work helping individuals and families throughout the island.
In late January, the Puerto Rico community came together to celebrate their new chapter through Summit of Strength and Walk-n-Roll events, with over 100 people in attendance. The half-mile Walk-n-Roll route was led by a police brigade and traditional Puerto Rican drummers and dancers, and Yojannies Guadalupe, DJ and adult living with SMA, provided excellent music and entertainment.
Cure SMA would like to thank our sponsors Biogen, Genentech, and Novartis for their support of the Puerto Rico Summit of Strength and Walk-n-Roll.
Our Chapters
With the addition of Puerto Rico, Cure SMA now has 37 chapters throughout the United States. Chapters provide a base of community and support for individuals and families affected by SMA, whether sharing practical advice or simply having someone nearby who understands the journey. Chapters also often work together to organize Walk-n-Rolls or other fundraising events, and they help keep their members informed of opportunities for local advocacy and awareness.
If you’re in Puerto Rico and want to get involved in the new chapter, email [email protected]. To check out your local chapter information, please visit our chapter page to find the chapter closest to you.
Our special thanks to Keishla, Elizabeth, Natasha, Ramon, Brenda and all the chapter leaders who work tirelessly on behalf of our community.
