Research

Genentech Presents New Data at the 2019 AAN Annual Meeting

April 29, 2019
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Genentech, a member of the Roche Group, announced today that new data will be presented at the 71st American Academy of Neurology (AAN) Annual Meeting […]

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Biogen Presents New Data Regarding Adults and Infants with SMA

April 17, 2019
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Biogen has announced it will present new data illustrating the rapidly progressive nature of spinal muscular atrophy (SMA) in adults, adolescents and older children at […]

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Community Update Survey Q&A

April 16, 2019
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Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas […]

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Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa

April 3, 2019
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Cure SMA and Cure SMA Canada have awarded a $150,000 research grant to Jocelyn Cote, PhD, at the University of Ottawa for his project, “Investigating […]

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Cure SMA Awards $200,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

March 28, 2019
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Cure SMA and FAME (Families of SMA, Argentina) have awarded a $200,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, […]

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Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 27, 2019
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Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Neurofilaments as markers of neurodegeneration in […]

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The Winter 2019 issue of Compass in Now Available Online

March 26, 2019
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The Winter 2019 issue of Compass is now available online. This issue covers Cure SMA’s latest drug discovery grant funding and features an updated SMA […]

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Record Number of Abstracts Submitted for the 2019 SMA Researcher Meeting

March 21, 2019
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Abstract submission is now closed for the 2019 SMA Researcher Meeting. We are excited to announce that we received 166 submissions, a record number. Our […]

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Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

March 14, 2019
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For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the […]

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Recording of Genentech/Roche and Cure SMA Webinar Now Available Online

March 14, 2019
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A recording of this week’s webinar with Genentech/Roche is now available online. During the webinar, Genentech/Roche shared their history working with the SMA community, and […]

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