Search Results: Living with SMA issues
Cure SMA Provides Record Number of Resources to Families Worldwide
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged […]
Read More ›Cure SMA Announces New Subcommittee on Adults with SMA
Cure SMA recently announced the formation of the Subcommittee on Adult Outreach. This group will work to actively engage the adult SMA community in order […]
Read More ›Why Give for Giving Tuesday?
Make today a breakthrough. Our spinal muscular atrophy (SMA) community has made great progress, but our work is not over! Through your generous donation, we […]
Read More ›Community Update from Genentech
We are pleased to share the following SMA community letter from our partners at Genentech on their clinical development programs and initiatives. Dear SMA Community, […]
Read More ›Musculoskeletal
Make today a breakthrough. Muscle weakness can cause several complications for individuals with spinal muscular atrophy (SMA). These complications are referred to as orthopedic or […]
Read More ›Quality of Life
Make today a breakthrough. There are options to consider after receiving a spinal muscular atrophy (SMA) diagnosis. Please know that the decisions to be made […]
Read More ›Advocacy
Make today a breakthrough. State and federal policies impact nearly all aspects of life for people with spinal muscular atrophy (SMA). Advocacy is critical in […]
Read More ›Infants & Children
Make today a breakthrough. A team approach and recent medical advances have improved the outlook for infants and children with spinal muscular atrophy (SMA). Cure […]
Read More ›Update on Genentech/Roche Initiation of MANATEE Clinical Study
We are pleased to share an update on Genentech’s, a member of the Roche Group, initiation of MANATEE, a new global Phase 2/3 clinical study […]
Read More ›Community Spotlight: I am…Viola Dwyer
February 28 is Rare Disease Day. Throughout the month—in recognition of our Redefining Rare initiative—we have been posting stories about SMA community members, showcasing their […]
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