Support & Care

Jadon’s Hope Foundation Donates 10 New Tomato Feeder Seats

October 22, 2015
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Cure SMA recently received a donation of 10 special tomato feeder seats from Jadon’s Hope Foundation. These were immediately sent out to families who were […]

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Dr. Mary Schroth Joins Cure SMA as Medical Professional Education Consultant

June 19, 2015
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We are very excited to announce that Dr. Mary Schroth has joined us as our medical professional education consultant. She will be working with us […]

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Spring 2015 Directions Posted Online

June 5, 2015
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The Spring 2015 issue of Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from all over the world […]

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Cure SMA Publishes New Care Series Booklet on Musculoskeletal System

April 20, 2015
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Cure SMA has recently released an updated version of our latest care series booklet, The Musculoskeletal System. As with all our care series booklets, The […]

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Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors

January 21, 2015
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Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]

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Join Cure SMA in Celebrating the International Day of Acceptance

January 19, 2015
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January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]

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Bugenske Family Donates $17,000 to Cure SMA Equipment Pool

January 9, 2015
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On Saturday, October 25, 2014, Leo’s Pride and over 600 participants ran and walked a 5K or 1 mile in support of Leo Bugenske and […]

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Fall 2014 Issue of Directions Now Online

December 26, 2014
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The Fall 2014 issue of Directions is now available. Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from […]

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Cure SMA Launches Survey on Family Support Programs

December 22, 2014
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We’ve just launched a survey to help determine the value and success of our family support and patient services programs. This survey is open to […]

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Registration Opens for the 2015 Annual SMA Conference

December 18, 2014
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Registration is now open for the 2015 Annual SMA Conference. The 2015 Annual SMA Conference will be held in Kansas City, MO, at the Westin […]

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