Support & Care
Applications Open for 2015 Annual SMA Conference Scholarships
Applications are now open for scholarships to the 2015 Annual SMA Conference, held June 18-21 in Kansas City, MO. You must complete an application form […]
Read More ›Cure SMA Provides Record Number of Resources to Families Worldwide
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged […]
Read More ›Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome our new members to our Medical Advisory Council. Welcome to: Julie Parsons, MD Nancy Kuntz, MD Perry Shieh, MD, PhD […]
Read More ›Kinetic Sand Donated for Care Packages
We are incredibly grateful to have received a large shipment of Kinetic Sand Activity Kits to be included in the Newly Diagnosed Type II Care […]
Read More ›Medical Advisory Council Gathers for Fall 2014 Meetings
Members of the Cure SMA Medical Advisory Council (MAC) are holding two days of meetings, November 7-8, at the Cure SMA national offices. The MAC […]
Read More ›Join Us in Kansas City
Earlier this year, we announced that our 2015 Annual SMA Conference will be held in Kansas City. We’ll be opening registration for the conference in […]
Read More ›Cure SMA Announces New Subcommittee on Adults with SMA
Cure SMA recently announced the formation of the Subcommittee on Adult Outreach. This group will work to actively engage the adult SMA community in order […]
Read More ›Applications for the Cure SMA Medical Advisory Board Due 10/1/14
Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets […]
Read More ›Funding Process Reaches Next Steps for Spinal Muscular Atrophy Clinical Care Research
At the end of last week, we announced the close of our for request for proposals (RFP) for clinical care research. A clinical care RFP […]
Read More ›Cure SMA Reaches Out to Newly Diagnosed Families
Cure SMA has invested nearly $57 million in SMA research in our 30-year history. But funding research is not the whole of our mission. We […]
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