Support & Care
Updated 2018 SMA Standards of Care Statements Available Online
The 2018 SMA Standards of Care recommendations were published in Neuromuscular Disorders in February 2018 and March 2018 and are available online through Open Access […]
Read More ›Summit of Strength Program Kicks Off in Cincinnati
As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support. […]
Read More ›Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years
Dr. John Kissel has treated patients with neuromuscular disorders from all over the United States. He specializes in spinal muscular atrophy and has been instrumental […]
Read More ›Spring 2018 Issue of Directions Now Available
The Spring 2018 issue of Directions is now available online. Check out our Support & Care publications page to download past issues of Directions and […]
Read More ›Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018
Cure SMA and Cytokinetics are very pleased to announce that Cytokinetics has committed to a National Platinum Partnership for 2018. Cytokinetics will be supporting several of […]
Read More ›Uniting the SMA Community Through Local Programs and Support
After her son William’s SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website […]
Read More ›Invitae Partners with Biogen to Offer Free Genetic Testing for SMA
Invitae Corporation recently announced that it will partner with Biogen to offer genetic testing at no charge to patients who may have spinal muscular atrophy […]
Read More ›Registration for the 2018 Annual SMA Conference Closes in Two Weeks
The deadline to register for the 2018 Annual SMA Conference is just two weeks away! Registration will close on Friday, May 4th. Over 1,100 people […]
Read More ›Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018
Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018. As a part of their partnership, Biogen will be sponsoring […]
Read More ›House and Senate Vote to Increase Federal Funding for Newborn Screening Programs
Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the […]
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