The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) passed the House of Representatives this summer but still has not yet received a vote in the Senate. Cure SMA encourages you to call your Senators and urge them to support the passage of the Act prior to the end of the year.
This legislation ensures that the critically important federal newborn screening program will continue to function and identify newborns with deadly but treatable chronic illnesses. Cure SMA has worked very closely with lawmakers in the House of Representatives and the Senate to secure legislative provisions in H.R. 1281 that will facilitate the addition of disorders like SMA to the federal recommended uniform screening panel.
Please call your Senators today and request their support in passing the Newborn Screening Saves Lives Reauthorization Act.