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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Spring Events

Summer event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

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Summit of Strength Program Kicks Off in Cincinnati

Summit of Strength Program Kicks Off in Cincinnati

As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community...

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Cure SMA Awards $300,000 Grant to Kevin Hodgetts, PhD, The Brigham and Women's Hospital

Cure SMA Awards $300,000 Grant to Kevin Hodgetts, PhD, The Brigham and Women's Hospital

Cure SMA has awarded a $300,000 preclinical drug discovery grant to Kevin Hodgetts, PhD, at the Brigham and Women’s Hospital, for his...

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Cure SMA Awards $300,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA Awards $300,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA has awarded a $300,000 preclinical drug discovery grant to Umrao Monani, PhD, at Columbia University, for his project, " Restoring...

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Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel has treated patients with neuromuscular disorders from all over the United States. He specializes in spinal muscular atrophy and...

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Roche Releases Community Update on Risdiplam

Roche Releases Community Update on Risdiplam

The following is a community update from Genentech/Roche on the risdiplam (RG7916) program.

Dear SMA advocacy community,

As...

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