SMA Awareness Month SMA Awareness Month SMA Awareness Month

SMA Awareness Month

Throughout August, the SMA community works together to raise the general public's awareness of SMA by hosting candlelight vigils, contacting their local legislature, holding fundraisers, coordinating MLB awareness games, and more!

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Pipeline PipelinePipeline

Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2017 Annual SMA Conference

Register now, as we are anticipating our largest conference ever. We look forward to celebrating our community and learning about the latest advances in research and care. See you in Orlando!

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Events Events Events

Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA-Funded Researchers, Diane Murrell and Deborah Boroughs, Publish Papers

Two Cure SMA-funded projects have recently been published. Diane Murrell and her team published the paper, "The Experience of Families With...

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Centers for Medicare and Medicaid Services (CMS) Survey

On August 3rd, as part of multiple days of advocacy visits, Cure SMA staff...

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2017 Researcher Meeting Summary: Regulation of Splicing and SMN Protein Expression

2017 Researcher Meeting Summary: Regulation of Splicing and SMN Protein Expression

The Annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year we had a record setting...

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Roche Opens US Recruitment for Phase 2 Clinical Trial

Roche Opens US Recruitment for Phase 2 Clinical Trial

Roche has opened enrollment in the US on one of their two Phase 2 clinical trials testing RO7034067 (also known as RG7916). Late last year,...

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SMA Families and Cure SMA Staff Visit Capitol Hill for Advocacy Efforts

SMA Families and Cure SMA Staff Visit Capitol Hill for Advocacy Efforts

On August 2nd, members of the spinal muscular atrophy community kicked off SMA Awareness Month by meeting with a dozen Senate and House...

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