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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2018 Annual SMA Conference

Registration is now open for the 2018 Annual SMA Conference, scheduled for June 14 -17, 2018 at the Hilton Anatole Hotel in Dallas, TX!

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Events Events Events

Spring Events

Spring event season is on its way. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA Receives Generous Gift

Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor...

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Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen has provided the following community statement on the final results from CHERISH, a Phase 3 study of SPINRAZA. 

Dear Members...

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Additional Funding for SMA Care Centers Announced

Cure SMA is pleased to announce the second round of grants from $450,000 in funding,...

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Cure SMA Announces Local Educational Symposiums in 16 US Locations

Cure SMA is pleased to announce a slate of one-day local symposiums, beginning late spring and continuing into fall 2018. The symposiums will be...

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Winter 2018 Compass Now Available Online

Winter 2018 Compass Now Available Online

The winter 2018 issue of Compass is now available

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