About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Conference Conference Conference

The Annual SMA Conference

At the largest SMA conference in the world, we bring together families, medical providers, and researchers to learn and collaborate.

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Events Events Events

Spring event season is in full swing

Find an event in your area, learn how to start an event, and help raise funds to advance SMA research and family support.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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21st Century Cures Unanimously Passes Committee

Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce...

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Collaborative Ways Cure SMA is Driving Research Results

Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work...

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Meet the SMA Family that Helped Inspire 21st Century Cures

Meet the SMA Family that Helped Inspire 21st Century Cures

In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has...

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Cytokinetics and Astellas Release Further Details on Upcoming Phase 2 Trial

Cytokinetics, in partnership with Astellas, has officially announced that recruitment will begin in the second half of 2015 for a Phase 2...

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Cure SMA Joins The Research Acceleration and Innovation Network

Cure SMA Joins The Research Acceleration and Innovation Network

Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures,...

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