About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Conference Conference Conference

The Annual SMA Conference

At the largest SMA conference in the world, we bring together families, medical providers, and researchers to learn and collaborate.

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Events Events Events

Spring event season is in full swing

Find an event in your area, learn how to start an event, and help raise funds to advance SMA research and family support.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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15th Annual New England Walk-n-Roll Raises Over $100,000

15th Annual New England Walk-n-Roll Raises Over $100,000

The 15th Annual New England Chapter Walk-n-Roll was held on Saturday, May 16, at beautiful DCR Wompatuck Park in Hingham, MA. The sun was...

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Cure SMA Receives NIH Grant

For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the

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In Memory of Ken Emerson

In Memory of Ken Emerson

Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, Ken...

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21st Century Cures Unanimously Passes Committee

Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce...

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Collaborative Ways Cure SMA is Driving Research Results

Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work...

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