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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2018 Annual SMA Conference

Registration is now closed for the 2018 Annual SMA Conference. We hope to see you in Dallas!

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Events Events Events

Spring Events

Spring event season is on its way. Join us! Find an upcoming event in your area, or host your own event.

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Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel has treated patients with neuromuscular disorders from all over the United States. He specializes in spinal muscular atrophy and...

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Roche Releases Community Update on Risdiplam

Roche Releases Community Update on Risdiplam

The following is a community update from Genentech/Roche on the risdiplam (RG7916) program.

Dear SMA advocacy community,

As...

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HHS Secretary, Alex Azar, Recommends Nationwide Newborn Screening for SMA

HHS Secretary, Alex Azar, Recommends Nationwide Newborn Screening for SMA

Health and Human Services Secretary Alex Azar today approved the recommendation that newborn screening for spinal muscular atrophy be...

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SMA Newborn Screening Moves Forward in New Jersey

SMA Newborn Screening Moves Forward in New Jersey

Earlier this month, the New Jersey State Senate Committee on Health, Human Services, and Senior Citizens unanimously approved

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Thank You For a Wonderful 2018 Annual SMA Conference!

Thank You For a Wonderful 2018 Annual SMA Conference!

Thank you to everyone who attended the 2018 Annual SMA Conference at the Hilton Anatole Hotel in Dallas, Texas! It was an impactful weekend of...

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