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Spinraza Access and Updates

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Learn more about the approval of Spinraza.

We recently sat down with SMA researchers, Cure SMA staff, and families in our community to talk about the approval of Spinraza (nusinersen). Listen to their words of gratitude and excitement.

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Events Events Events

Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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Biogen Releases New Data from Cherish and Nurture Trials

Biogen Releases New Data from Cherish and Nurture Trials

Biogen will present Phase 3 end of study SPINRAZA® (nusinersen) data from CHERISH, which demonstrated a highly statistically significant and...

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Cure SMA to Host Webinar on Spinraza Access, as List of Administration Sites is Released

Cure SMA to Host Webinar on Spinraza Access, as List of Administration Sites is Released

On Thursday, May 4, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA will hold a webinar updating the community on the status of...

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The European Medicines Agency (EMA) Recommends Granting Marketing Authorization in the European Union for Spinraza

The European Medicines Agency (EMA) Recommends Granting Marketing Authorization in the European Union for Spinraza

The European Medicines Agency (EMA) has recommended granting a marketing authorization in the European Union (EU) for Spinraza. The...

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SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

The SMA community is eagerly looking forward to next week’s Patient-Focused Drug Development (PFDD) Meeting with the FDA.

Over 400...

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Cure SMA Awards $75,000 Grant to Jean Giacomotto, PhD, University of Queensland, Australia

Cure SMA Awards $75,000 Grant to Jean Giacomotto, PhD, University of Queensland, Australia

Cure SMA has awarded a $75,000 research grant to Jean Giacomotto, PhD, at the University of Queensland, for his project, "Zebrafish models of...

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