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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2018 Annual SMA Conference

Registration is now open for the 2018 Annual SMA Conference, scheduled for June 14 -17, 2018 at the Hilton Anatole Hotel in Dallas, TX!

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Events Events Events

Spring Events

Spring event season is on its way. Join us! Find an upcoming event in your area, or host your own event.

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AveXis to Present Phase 1 Data at the 70th American Academy of Neurology Annual Meeting

The Phase 1, open-label, dose-escalation trial

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SMA Community Leaders to Gather in Washington DC to Network, Learn and Advocate

SMA Community Leaders to Gather in Washington DC to Network, Learn and Advocate

On Thursday, April 26, more than 70 chapter leaders, event organizers and board/committee members, representing 24 states and DC, will gather in...

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The Discovery of Spinraza

The Discovery of Spinraza

SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this...

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Cure SMA Database Findings Published in the Journal of Neuromuscular Diseases

Cure SMA Database Findings Published in the Journal of Neuromuscular Diseases

An important goal at Cure SMA is to collect data to better understand the SMA patient population, and then to report this data back to our...

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Biogen Presents New Data at the American Academy of Neurology (AAN) Annual Meeting

Biogen Presents New Data at the American Academy of Neurology (AAN) Annual Meeting

Biogen recently presented new data on Spinraza for the treatment of spinal muscular atrophy (SMA) during the 70th American Academy of Neurology...

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