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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2018 Annual SMA Conference

Registration is now open for the 2018 Annual SMA Conference, scheduled for June 14 -17, 2018 at the Hilton Anatole Hotel in Dallas, TX!

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Events Events Events

Fall Events

Fall event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

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7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together...

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SMA Advocates Testify at Federal Newborn Screening Meeting

On Wednesday, November 8, advocates testified at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) in support of...

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Biogen Issues Community Update on Spinraza

Biogen Issues Community Update on Spinraza

Biogen has provided the following community statement on Spinraza. 

Dear Members of the SMA community,

As part of our...

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2017 World Muscle Society Congress Recap

From October 3rd through October 7th, Cure SMA attended the 22nd International Annual Congress of the World Muscle Society (WMS) in Saint Malo,...

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New Clinical Trial Data Published in New England Journal of Medicine

Two new papers of clinical trial data for spinal muscular atrophy were published today in the November issue of the New England Journal of...

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