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Shaping the Future of Treatment

Because of the progress in our drug pipeline, we’ve launched a number of urgent initiatives to give drug programs the best chance of success.

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Shaping the Future of Care

As FDA-approved treatments extend the lives of those with SMA, care will become more and more important. Our goal is not only to extend life, but also to ensure the best possible quality of life.

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The Miller McNeil Woodruff Foundation Makes a Generous Contribution to Cure SMA

The Miller McNeil Woodruff Foundation Makes a Generous Contribution to Cure SMA

The Miller McNeil Woodruff Foundation awarded $87,000 to Cure SMA, in order to further research that will lead to a treatment and cure...

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Cure SMA-Funded Researcher, Chad Heatwole, Publishes Paper on Clinical Trial Outcomes in Adults with SMA

Cure SMA-Funded Researcher, Chad Heatwole, Publishes Paper on Clinical Trial Outcomes in Adults with SMA

Cure SMA-funded researcher, Chad Heatwole, and his team, have published a paper, "What Matters Most: A Perspective From Adult Spinal Muscular...

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The Lancet Publishes Data from Phase 2, Open-Label Trial of Spinraza (Nusinersen) in Infants

Today, Lancet published results from the Phase 2, open-label trial of nusinersen (Spinraza) in infants. This trial initiated in 2013, and...

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Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the...

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Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

On Tuesday, November 29, more than 160 people from the SMA community - including government and industry partners - gathered for the 6th Annual...

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