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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Learn more about the approval of Spinraza.

We recently sat down with SMA researchers, Cure SMA staff, and families in our community to talk about the approval of Spinraza (nusinersen). Listen to their words of gratitude and excitement.

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Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Yesterday, members of the Senate released draft...

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Cure SMA Update - Senate Healthcare Bill

Cure SMA Update - Senate Healthcare Bill

The US Senate is currently working on legislation to modify the Affordable Care Act. Though details of the Senate’s plan are not yet...

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Launch of Phase 2 SMA Industry Collaboration Announced

Launch of Phase 2 SMA Industry Collaboration Announced

Cure SMA is pleased to announce the launch of Phase 2 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted...

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Cure SMA Advocacy Activities for the 2017 Year-to-Date

Cure SMA Advocacy Activities for the 2017 Year-to-Date

The first half of 2017 has been an active six months for Cure SMA and SMA advocates. Cure SMA and members of our community have been working...

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2017 Annual SMA Conference Booklet Now Posted

2017 Annual SMA Conference Booklet Now Posted

The 2017 Annual SMA Conference Booklet is now posted. 

The...

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