Pipeline PipelinePipeline

Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

Learn MoreLearn More
Conference Conference Conference

2018 Annual SMA Conference

Registration is now open for the 2018 Annual SMA Conference, scheduled for June 14 -17, 2018 at the Hilton Anatole Hotel in Dallas, TX!

Learn MoreLearn More
Events Events Events

Fall Events

Fall event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

Learn MoreLearn More

Cure SMA Contributes Article to a Special Issue of the Journal Gene Therapy

To celebrate the FDA approval of Spinraza, Cure SMA contributed an article to the September special issue of the journal Gene Therapy. The issue...

READ MORE

Registration is Now Open for the 2018 Annual SMA Conference!

Registration is Now Open for the 2018 Annual SMA Conference!

Registration is now open for the 2018 Annual SMA Conference! This year’s conference will be held at the Hilton Anatole Hotel in Dallas,...

READ MORE

Cure SMA Meets in Utah with State and Federal Elected Officials to Support Newborn Screening

Cure SMA Meets in Utah with State and Federal Elected Officials to Support Newborn Screening

On Tuesday, Cure SMA staff members and family advocates, and clinicians from the University of Utah, met with Senator Orrin Hatch (R-UT) to...

READ MORE

Genentech/Roche Releases Clinical Trial Update for SUNFISH (RG7916)

Genentech/Roche Releases Clinical Trial Update for SUNFISH (RG7916)

Genentech/Roche has provided the below community statement with clinical trial updates for SUNFISH (Type 2/3). The first patient is now enrolled...

READ MORE

2017 SMA Awareness Month Recap

2017 SMA Awareness Month Recap

The SMA community celebrated an impactful and advocacy-driven Awareness Month through a number of ways this August. Whether hosting candlelight...

READ MORE

© 2014 Cure SMA | Privacy Policy

Powered by Blackbaud
nonprofit software