Events Events Events

It's fall event season.
Join us!

Find an event in your area, learn how to start an event, and help raise funds to advance SMA research and family support.

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Conference Conference Conference

The Annual SMA Conference

Family registration is open for our 2016 Annual SMA Conference, held June 16-19, at the Disneyland Hotel in California!

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About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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PTC Announces New Clinical Trial Results at World Muscle Congress

PTC Therapeutics, in partnership with Roche and the SMA Foundation,


Community Update on ISIS-SMNRx from Biogen and Isis

Biogen and Isis Pharmaceuticals recently provided an update on the clinical development of ISIS-SMNRx, which is currently being tested in Phase...


New Gene Therapy Results Announced at World Muscle Congress

Nationwide Children’s Hospital/AveXis recently


Registration Open for the 2016 SMA Researcher Meeting

Registration Open for the 2016 SMA Researcher Meeting

Registration is now open for industry and...


House of Representatives Passes Ensuring Access to Clinical Trials Act

The House of Representatives has passed the Ensuring Access to Clinical Trials Act of 2015 (EACT). This bill already passed the Senate in July,...


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