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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2018 Annual SMA Conference

Registration is now open for the 2018 Annual SMA Conference, scheduled for June 14 -17, 2018 at the Hilton Anatole Hotel in Dallas, TX!

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Events Events Events

Spring Events

Spring event season is on its way. Join us! Find an upcoming event in your area, or host your own event.

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Last Week's Webinar on Treatment Access and Clinical Trials Now Available

A recording of last week’s webinar updating the community on treatment access and clinical trials is now available

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Cure SMA Receives Generous Gift from the Weisman Family Foundations

Cure SMA Receives Generous Gift from the Weisman Family Foundations

The Weisman Family Foundations recently awarded $65,800 to Cure SMA, in order to further new scientific research, and to help provide access to...

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Phase 2 Clinical Trial Results for CK-2127107 Expected in Second Quarter of 2018

Phase 2 Clinical Trial Results for CK-2127107 Expected in Second Quarter of 2018

Cytokinetics is currently conducting a Phase 2 clinical trial of CK-2127107 – now referred to by the generic name, reldesemtiv –...

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Cure SMA Receives Generous Gift

Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor...

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Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen has provided the following community statement on the final results from CHERISH, a Phase 3 study of SPINRAZA. 

Dear Members...

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