About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Conference Conference Conference

The Annual SMA Conference

At the largest SMA conference in the world, we bring together families, medical providers, and researchers to learn and collaborate.

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Events Events Events

Spring event season is in full swing

Find an event in your area, learn how to start an event, and help raise funds to advance SMA research and family support.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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Seven Individuals and Families Recognized for Their Contributions to the Community

Each year, while much of our community is gathered together, we use the Annual SMA Conference to recognize several individuals, families and...

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Cytokinetics Releases Update on Phase 1 Trial at Annual SMA Conference

At last week’s Annual SMA Conference, Cytokinetics

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Isis Announces Additional Trial Results at Annual SMA Conference

At last week’s Annual SMA Conference, Isis Pharmaceuticals, Inc.

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Cure SMA Announces Nearly $2 Million in New Planned Research Funding

Cure SMA Announces Nearly $2 Million in New Planned Research Funding

Cure SMA has announced plans to fund $1.995 million in new research grants over the next several months.

This includes funding for all...

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Dr. Mary Schroth Joins Cure SMA as Medical Professional Education Consultant

Dr. Mary Schroth Joins Cure SMA as Medical Professional Education Consultant

We are very excited to announce that Dr. Mary Schroth has...

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