Events Events Events

August is SMA Awareness Month.

Get involved with our annual candlelighting on the 13th, along with other planned activities, all month long!

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Conference Conference Conference

Annual SMA Conference

Check out the latest updates from the
2016 Annual SMA Conference.

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About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future
without SMA.

We now have 18 programs in the SMA drug
pipeline. Together, we're making real
progress toward a treatment and a cure.

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Cure SMA Announces $2.5 Million in New Planned Research Funding

Cure SMA Announces $2.5 Million in New Planned Research Funding

At the 2016 Annual SMA Conference, Cure SMA announced $2.5 million in new planned research funding over the next 12 months. This funding will be...

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AveXis Receives FDA Breakthrough Therapy Designation for AVXS-101 (Gene Therapy) for SMA

AveXis Receives FDA Breakthrough Therapy Designation for AVXS-101 (Gene Therapy) for SMA

AveXis, Inc., a clinical-stage gene therapy company developing treatments for patients suffering from rare and life-threatening neurological...

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Cure SMA-Funded Researcher Rashmi Kothary Publishes Paper in Scientific Reports

Dr. Rashmi Kothary and his team have recently published a paper,...

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Cure SMA Awards $50,000 Drug Discovery Grant to Kevin Hodgetts, PhD, at The Lab for Drug Discovery in Neurodegeneration at Brigham and Women’s Hospital

Cure SMA Awards $50,000 Drug Discovery Grant to Kevin Hodgetts, PhD, at The Lab for Drug Discovery in Neurodegeneration at Brigham and Women’s Hospital

Cure SMA has awarded a $50,000 drug discovery grant to Kevin Hodgetts, PhD, at The Lab for Drug Discovery in Neurodegeneration at Brigham and...

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Cure SMA Awards $50,000 Drug Discovery Grant to Barrington Burnett, PhD, at Uniformed Services University of the Health Sciences

Cure SMA Awards $50,000 Drug Discovery Grant to Barrington Burnett, PhD, at Uniformed Services University of the Health Sciences

Cure SMA has awarded a $50,000 drug discovery grant to Barrington Burnett, PhD, at Uniformed Services University of the Health Sciences. The...

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