Events Events Events

August is SMA Awareness Month

Host an event or candlelighting, request a proclamation, attend SMA Awareness Day at the ballpark, and more.

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Conference Conference Conference

The Annual SMA Conference

Our 2016 Annual SMA Conference will be held
June 16-19, at the Disneyland Hotel in California!

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About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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Western New York Teen Wins Nickelodeon Halo Award

Western New York Teen Wins Nickelodeon Halo Award

Fourteen-year-old Bailey Walter was recently selected from among 20,000 entrants to receive the August Nickelodeon Halo Effect Award. This award...

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New Update on Clinical Development of RG7800

Genentech recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is being studied as...

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2015 SMA Researcher Meeting Summary: SMA Pathology

2015 SMA Researcher Meeting Summary: SMA Pathology

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and...

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SMA Awareness Month Breakthroughs

SMA Awareness Month Breakthroughs

Thanks to our vibrant community, SMA Awareness Month is off to a fantastic start.

Through the

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2015 SMA Researcher Meeting Summary: Drug Discovery

2015 SMA Researcher Meeting Summary: Drug Discovery

We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and...

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